Monday, September 20, 2010

Join the Klub


Its official....Matthew is a Keto Kid!

......Actually he's been a Keto Kid for almost a month now; his mommy just can't seem to get around to blogging about it.....

August 23rd is a day to remember. We joined the Keto club.

For those of you who don't know, the Ketogenic diet is a diet that is used for hard-to-control seizures. The diet is high in fat, low in carb and allows for the body to build up Ketones as an energy source in the brain instead of glucose. For more on the diet please go here.
We prayed for months on the diet and our sweet Matthew. His seizures are hard to control. We are currently on two anti-seizure medications with no avail.

So we spoke with our neurologist and decided to give it a try!

We started to diet process with a twenty-four hour EEG. Matthew was NOT impressed. The goo, the wires, the whole dramatic event made him one unhappy little camper.
The big guns (Dr. Epilepsy) came in and spoke with us about Matthew's seizures. He showed us the MRI that had been done prior to the diet. Its all a bit overwhelming. Matthew has little of the left side of his brain. What he does have is constantly firing seizures. The the right side of his brain is more intact, but he is still firing seizures from many points. Needless to say, our sweet prince is living in a fog due to constant seizure activity and medications.

The stay in the hospital lasted three days. We trained and trained. We were constantly met by our dietitian, our educator, nurses, doctors, you name it-they saw us. We learned a lot and asked many many questions.
Wednesday came, and we were going home.

Matthew has adjusted to the diet fairly well. Though we are not yet seeing a big decrease in his visible seizures, we all agree that he has had a decrease in the seizures we were not seeing.

He is much more alert and vocal. He is making new sounds. His eyes are clearer, and his opinions more widely known!

We could not be happier.
We know we may never be seizure free. We understand that Matthew's diagnoses are hard to swallow and allow for a lifetime of commitment.
We see our loving baby boy smiling and cooing and playing! What could be better?!
Typically if the diet is even a moderate success, you remain on it for two years. So we are only in the beginning.
As the parent of a medically fragile child, sometimes I doubt my decisions. I stand at the crossroads of "what if" and "why not." We debated and complied about this chance at a glimpse of a seizure free(er) child for so long. However, as I type this I am proud of our decision. My son deserves the best. This diet could be that for him.

Here's praying for less rainy days for Matthew!!!

1 comment:

  1. Praying that the diet works well for Matthew and you continue seeing lots of changes for the better.
    My son was on the diet for about 6 years and it was a life saver for him.