My heart aches today.
Matthew has seized since the moment he woke up yesterday. He normally has about twenty seizures a day. We have not seen any great results yet, but are determined to stick this out and hope for the best. Yesterday he had at least seventy five seizures. They varied in all types. He jerked, he zoned out, he had clusters. And now I am at a loss.
To add to that, he has been holding his breath when he gets upset. I spoke my concerns with our doctors, and they assured me this was normal for his age. Well, today his lips turned completely blue several, several times!
I want to take his pain away. I want to hurt for him. And yet there is simply nothing I can do!
So today, blogger friends, I am at a loss. I need prayers and wisdom.