Wednesday, March 23, 2011

Over the Hump

Advocacy...


A word to strike fear in every special needs mom's heart.


Are we doing enough?

Did we gather enough donations?

Did we spread the word to as many people as we could?

That word alone keeps me from sleeping many nights.


I think as a mother to two wonderfully special children, the urge to "change the world" pulls strong.


It beckons me in my sleep.  It haunts my dreams.


It drives my crazy. 


Luckily, my new best friend, Kindle, has opened up more books regarding advocating for my children.


Unluckily, it leaves me feeling even more overwhelmed.


Our motto has always been to educate your own community.  Start small.  Spread the word. 


It may sound easy cheesey, but then life happens.


As my children grow, I want them to be proud and strong.  I want them to see the Ability in their disAbility.  Its a lesson that is sometimes hard to teach even in our own home.


I find myself telling Autumn there is no way she can do something.  Autumn keeps finding herself proving Mommy wrong.


Take today for instance:


Autumn has mastered her wheelchair.  Next week we will order her very own and with any luck it will be just amazing!!!
  (We are keeping the colors secret for now)

She can roll all through the living room and dining room.  She has maneuvered herself into the hallway to go into her bedroom.  The kitchen, however, presents a problem.  The entryway into the kitchen has a "door seal" on it.  Forgive myfeminine ways when speaking about anything involving construction.  She has gotten so frustrated because she can't seem to get over that hump.


Today as I was washing dishes, she proceeded to try again.  I continued to tell her she would not be able to get over the hump.  She continued to scream and throw a fit.  I decided to pick my battles on this one and continue to let her try. 


As I was walking into the living room I heard her start rolling pretty fast.  I turned around to see my sweet girly girl do a wheelie in order to get over the hump and into the kitchen!! 


My first reaction~~~Wooohoooo!!!!  Look what she can do!!!
My second reaction~~~~Oh no, now she can get into the kitchen!


After clapping for herself ever-so-proudly she rolled right into the laundry room and started removing the clothes from the hamper and throwing them on the floor.


Mommy's little helper.




In that moment, though, I realized that sometimes I am too quick to give up and not get over the "hump."  I get discouraged and outraged.  I preach on my soap box from my very own porch. 

And then my voice goes quiet.  I am terrified of ridicule or scrutiny. 

My children deserve so much better.

So here, in the middle of the night, by the light of my laptop I am choosing to spread the word. 

"Never be afraid to raise your voice for honesty and truth and compassion against injustice and lying and greed. If people all over the world...would do this, it would change the earth. "
William Faulkner




1 comment:

  1. I don’t want people to feel sorry for me, that’s not why I am writing this post. My child six years ago, was born with Bi-lateral closed lip schizepcephaly, which is even more unique than the regular cases. Due to this disability, she also developed Cerebral Palsy affecting the left side of her body. We’ve learned the part of her brain which has been affected has also impaired her ability to reason. We’ve been lucky so far though it affects everyone differently and she had been on the very mild side of everything. Another thing we had to dealt with much are seizures. She was highly prone to having one or multiples and we’ve seemed to look out with some petite mals when she was younger and they occurred in her sleep more than any other time.
    Luckily, everything seemed to be okay after she took an Herbal Medicine. I wish I could say that’s the end of it because she havn't had any symptoms since then.
    Having a child with special needs is difficult. You sit living in fear of the reality your child may face, never really knowing what will happen until it does. Do not expose yourself to more danger, use a herbal remedy that is safe and effective. If interested contact him:
    ronniemd70@gmail.com to find out more information about the disorder and treatment.

    ReplyDelete