One of the hardest diagnoses to understand and explain is Schizencephaly.
Matthew has Bilateral open-lipped Schizencephaly.
Yeah, I know....you are asking "What?"
Well Schizencephaly (meaning split-brain) is an extremely rare developmental birth defect characterized by abnormal clefts in the cerebral hemispheres of the brain.
We think Matthew is pretty rare! He is unlike any other little boy on the planet!
Most diagnosed with Schizencephaly expereince developmental delays, language delays, and seizures. It has also been related to blindness.
Needless to say it is a big word with little common knowledge known to how it relates to Matthew.
We cannot isolate any one of Matthew's indiviual needs to any one diagnosis. Matthew is constantly keeping us on our toes with his varying degrees on medcial need.
Schizencephaly occurs during the first to fifth month of gestation.
Some affected have normal intelligence. This is another spectrum disorder with varying degrees of severity.
There are few resources availbe regarding Schizencephaly. Some of the most influential information I have received have been from parents with "Schiz" kids.
As always, we do not allow Matthew's diangoses dictate his life. He is our little man, first and foremost. He is strong and beautiful. He is sweet and tenderhearted. He loves the sound of Cookie Monster and the music of The Beatles.
For more information on Schizencephaly try here or here.