Thursday, May 5, 2011

Seizure Monsters and Magic Swords

As children our parents taught us to not fear the monsters that lurked beneath our beds.
They taught us the scary things in our closets were figments of our imaginations.
Our parents made certain we understood that in the darkness was only the darkness and nothing more.

As parents ourselves we have come to know better.
Sadly in our home the monsters do not hide.

The seizure monster is here.

All.  Day.  Long.

He sits at our dinner table.

When I look into my rear view mirror I see two beautiful babies and him.

In the middle of the night he is there.  
He follows Matthew everywhere Matthew goes.

We hate the seizure monster.

We fight him daily.  We yell at him to leave.  We slam the door in his face only to spin around and see he has somehow returned.  We hide beneath our blankets and wait for the sun to come out.  For goodness sakes, this is what worked when we were kids.

As adults, this solution is not so easy.  He still lurks in the night.  He lurks in the daytime. 

And now the seizure monster is threatening to lurk into our daughter's life as well.

Soon we will be undergoing a sleep study and video EEG to rule out night time seizures.  Autumn's night terrors have continued, and her doctors want to make sure we are not seeing seizure activity.

How did this happen?

How is this fair?

He already invades our sweet boy.  He already attacks Matthew hundreds of times a day. 
Why does he have to attack Autumn as well? 

I could throw a pity party and ask all of you to send me your very best pity gifts, or I could pull up my big girl panties and deal with this. 

I guess I have indulged enough feeling sorry for my family. 

Today, we will pick up our swords.  We will fight the beast in our closets.  We will fight him from underneath our beds.  We will never stop fighting. 


Please say a prayer for us.  And if you happen to see a magical seizure monster slaying sword laying around somewhere.....well you know we are taking stock!

We will NOT lose another moment to seizures!!

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