A few weeks ago we met with Matthew's new neurologist.
I am impressed!!
Dr. K was caring, thoughtful, and thorough. The appointment went long but not because we spent any time waiting. They looked over Matthew time and time again. Children's Medical in Dallas is an amazing facility.
With that one appointment we discussed med options, set up labs, talked about genetics, and set up an EEG.
That EEG took place two weeks ago. We arrived at 10:00 am, and were escorted to our home for the next twenty-four hours.
Matthew reacted the way he normally does....like a true rockstar.
He won the nurses over with his long eyelashes and charming grin.
We are pretty experienced in the EEG world. We pushed our "activity" button often, and seconds later a team of nurses were there to check on us.
When we saw Dr. K the next morning, she explained what she had seen.
Matthew's right side of his brain is worse than his left. His left has frequent activity as well, but there is no normal brain activity. In his sleep, Matthew's brain goes a little crazy.
All of this was news we were expecting.
In saying that, it really never gets easier.
Upon leaving the hospital we started Depakote (anti-seizure med) and started weaning Phenobarbital (another anti-seizure med.)
Well folks, let me tell you something......
We have gone six days seizure free!
And I realize that by saying that we are tempting fate; however, we are taking our miracles where we can get them.
And this is a miracle!!!!!!
He is more alert, vocal, and even getting angry.
Yesterday he had his very first iPad experience. He loved it so much that when it was taken away, he pursed his lips together, made an angry face, and started to whine!!!
Seriously music to my ears!!!!
Every day is a new day for us. We know all too well how fast things can change.
There are moments when I find myself simply speechless.
If you know me, then you know this instance does not happen often.
However, I had a moment this past week where I was simply lost for words.
My children were referred to as victims.
If you are an avid blog reader of mine or simply someone in our community then you are well aware of the awesomeness that are my children.
I understand that to the outside, special needs as a whole seem to be a group that is often pitied.
On the inside of this tight-nit community, it is a completely different story.
They are not victims.
They are survivors.
Each and every special needs person I have met, virtually or in person, young or old, have fought their own personal war. They carry their scars with pride. They envelope a sense of acceptance and hope to those who know them best.
They have survived!
Some of the strongest people I know come in tiny, sometimes broken, packages.
I mean really, have you met my children?!
It hurts my heart that society views special needs in a lacking manner. We don't lack for anything! I am blessed each and every day watching my children learn something new.
For the record....
Special needs are not weak~~~they have more strength than you may ever understand
Special needs are not lacking~~they possess more spunk and courage than most people I know
Special needs are not quiet~~Sometimes you don't have to say a word to speak volumes
Special needs are not fragile~~God gave them some extra fight
Special needs are not victims~~they are survivors
When you find yourself feeling pity for a person with extra needs, remember this:
Have you ever been to a place that was so spectacular it brought tears to your eyes?
A place that you could feel the love and acceptance the moment you walked through the doors?
Well then, maybe you should drive down to San Antonio, Texas and spend the day at Morgan's Wonderland!
Morgan's is a park built for special needs. It is the epitome of inclusion. The moment you walk through the doors and get your bracelet (...super security Batman) you see a picture of hope.
And then the fun begins!
We were fortunate enough to be able to attend the 2011 Division for Blind Services Annual Conference this year. And where was it held? Yep, that's right at Morgan's Wonderland!
Even Brandon fought back tears upon seeing all the amazing things these people thought of! Matthew was able to swing! He was able to swing once by himself in a seat that could have been built just for him. Then we had the amazing experience of seeing a swing for wheelchairs. I was one proud mommy to watch my sweet lil guy experience what I believe is an experience all children should have.
Its amazing to me how watching your child swing can change your perspective on life. How small and minute our tiny miracle must have seemed like to anyone watching, but from the very beginning seeing Matthew swing has been a dream for us.
And the fun and amazement did not stop there!
Along with a train ride around the park, handicap accessible of course,
We spent time at the Water Works...
And the Sensory Village!
I don't even think I could tell you what was my favorite part. It was just so magical!
In the Sensory Village, we let Autumn go wild!!
She shopped for her own groceries :::wink:::
Matthew and Autumn both rode a horse!
We colored cars and played with tools.
And then we had a blast in the sensory room
It was awesome in the sensory room...
Whether we were catching butterflies
Even the adults had fun!
If you love someone with special needs, Morgan's Wonderland should be on the top of your to-do list!
And that was just the beginning of our wonderful family vacation!
I am a wife, mother, sister, and friend. Some days I am a maid, chef, taxi, and confidant. Everyday I am a sinner saved by grace that which I do not deserve. This is our story of expanding our family through adoption, and raising our special kids who happen to be superheros! Please join us in our laughter and tears. Put on your seat belt and enjoy the ride!