Saturday, December 31, 2011

Autumn Recap

Would you like to know what Autumn has been up to?

Well, Autumn has been up to a lot!

She is now two! 


Time truly does fly when your children are growing. 

Autumn has been growing right before our very eyes.  Since starting speech therapy, Autumn has become the little chatterbox.  She is trying to talk in sentences.  She has developed her own language, as well.

And for your viewing pleasure, a look into our sweet Autumn-ese

Cup O' Juice~~She would like her cup
Getcha Getcha~~She is telling you she is done
Down chupa Down~~She wants off the couch
No Goat~~ To get out of trouble ( and I have no idea why)

She has also decided she is a dancing queen.  She spins, she headbangs, she rocks out.  Our girl has got moves!

Her sensory issues still rear their ugly heads from time to time.  She still does not like stuffed animals.  However, she has decided she needs a baby doll.

Three to be exact.  And they all play a different part.  She sleeps with one, plays with one, and has the other one in the toy box in case she can't find baby one or baby two. 

The baby doll she sleeps with now has a name.  She lovingly refers to her baby as Baby Jesus.

I may have the sweetest little girl in the world.

Her big Scottish Rite appointment is approaching in February.  She is starting to complain that her feet hurt (which shouldn't be possible).  Hopefully, we can convince the doctors to run some tests and see if how mulch feeling she does have.

In potty training news:

Well zip.

As in nada.

As in she tells you after she goes to the bathroom, but has yet to actually go in the potty.

So for now, we wait.

I think that about sums up our sweet girl!

Matthew Recap

I thought long and hard about how to start blogging again.  I finally decided the best way to do this is a recap post.  I apologize for the length, but we have been busy little bees.

And first to bat is....


After many fail attempts with anti-seizure medications, we made the decision to begin weaning.  We started with a four-day wean of Keppra.  The weaning process was fairly simple, and the transition was easy.

Clobazam wean was next.  This ten-week wean took its toll.  Every time we would decrease, we would have a few pretty hard seizure days.  Then a miracle happened.  Three days after we stopped Clobazam, Matthew stopped having visible seizures.  Two weeks later, Matthew had one seizure in the evening.  It was a hard one.  He needed Diastat to come out of it.  But just as we began to lose hope, the seizures stopped.  As of today, Matthew has been seizure free for almost three weeks!!

God is faithful.  All. The. Time.

Matthew has had some tummy issues.  Since the end of October, he has lost four pounds.  This week we will have two tests done.  First up, Matthew will have an Upper GI done.  Then we will test for delayed gastric emptying.  Depending on what the results of these tests are, we will be having another surgery. 

With the absensce of his seizures, Matthew has really come out of his shell.  He is smiling and talking more each and every day. 

In April, our little guy turns 3.  Can you believe it?  The day after his birthday, our Matthew will begin a brand new journey. 


I think that generally covers what Matthew has been up to.

  He continues to amaze us everyday.

Editor's Note:  The day after this was typed, Matthew had several seizures.  We are hoping they are due to his tummy issues.  He has still not had any for two days.  We will take our miracles where we can get them.  

Wednesday, December 28, 2011

Hello There!!

Hello blogger buddies!

Long time, no post, huh?

I would love to be able to tell you that I was busy bringing about world peace or something as equally awesome.  But, alas, I was simply over run. 

A few months ago, I found myself in a rut.  As hard as I tried, I couldn't seem to dig my way out.

But with a renewed spirit, I have decided to start blogging again.

I wish I could promise to catch you up.  However, since it has been so long since I have blogged, I think I will start new.

New Year, New Blog.

I will leave you with a sweet picture of my sweet babies.