And first to bat is....
After many fail attempts with anti-seizure medications, we made the decision to begin weaning. We started with a four-day wean of Keppra. The weaning process was fairly simple, and the transition was easy.
Clobazam wean was next. This ten-week wean took its toll. Every time we would decrease, we would have a few pretty hard seizure days. Then a miracle happened. Three days after we stopped Clobazam, Matthew stopped having visible seizures. Two weeks later, Matthew had one seizure in the evening. It was a hard one. He needed Diastat to come out of it. But just as we began to lose hope, the seizures stopped. As of today, Matthew has been seizure free for almost three weeks!!
God is faithful. All. The. Time.
Matthew has had some tummy issues. Since the end of October, he has lost four pounds. This week we will have two tests done. First up, Matthew will have an Upper GI done. Then we will test for delayed gastric emptying. Depending on what the results of these tests are, we will be having another surgery.
With the absensce of his seizures, Matthew has really come out of his shell. He is smiling and talking more each and every day.
In April, our little guy turns 3. Can you believe it? The day after his birthday, our Matthew will begin a brand new journey.
I think that generally covers what Matthew has been up to.
He continues to amaze us everyday.
Editor's Note: The day after this was typed, Matthew had several seizures. We are hoping they are due to his tummy issues. He has still not had any for two days. We will take our miracles where we can get them.